We have often talked, Brian and I, about how or when this season may unfold. It's not something which can be predicted and a good portion of it cannot be prepared for and yet it is inevitable in some form or another. It's the season of aging parents requiring care beyond what is currently working.
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| Mum and Dad in "The Honeymoon Suite" |
On September 13, life as we had known it seemed to fall apart. Both of Brian's parents ended up in the same hospital on the SAME day, just at different times. We affectionately named their room, "The Honeymoon Suite" which they occupied for two weeks. Mum returned home to their assisted living apartment but with 24 hour care provided through CCAC. Dad was transferred to a rehab hospital 30 minutes away and was a patient there for a month. In the meantime, we, along with Brian's brother and sister-in-law toured Long Term Care Residences and were able to move Mum to a wonderful home almost 3 weeks ago. Dad is scheduled to move into a retirement suite in the same village on November 16.
It takes only a handful of sentences to list in a simple fashion the events which have unfolded since that Tuesday in September. But if you have ever entered into this life circumstance yourself, you will know that there is an ocean of stress and heartache and challenges and concern and important decisions which weigh on you day in and day out. It was a whirlwind of activity which we were thrust into overnight. It has changed everything.
Mum is 10 years with Alzheimer's now and went from her quiet "normal" with Dad as her sole caregiver to a world of confusion and depression and despondency. It was so very painful to watch. She could not grasp the revolving door of Personal Support Worker's in her apartment when it had once been just her and Dad. And each worker, whether they had been there the day prior or not, was always a stranger. In fact, even if they only stepped out of the apartment for a brief moment, she would forget that they had just been with her. I would try to imagine what it would be like to wake up in the morning with a stranger in my home and my soul would ache. Over and over and over again we would explain to her where Dad was and why she needed the additional care of the PSW's. At times she hardly ate and was psychically sick from anxiety and persistently said through tears, "I just want to die."
I struggled greatly with my own questions and trying desperately to see God in her circumstances. It had been so evident that He was a God of generous provision amidst all that had transpired at the hospital, the Intensive Program she qualified for through CCAC for 24 hour care at home, as well as a place for Dad to recover. We had countless opportunities to give thanks to God for all that He was providing. But Mum was tortured in her mind and it grieved my spirit greatly. Her ministry life had been widespread and faithful for so many years and now He was not giving her peace. Why???
My Spiritual Director wisely guided my thoughts to another question, "What are your expectations of God, Juanita?" She gently continued to remind me that God had not promised us an easy passageway through life, but rather a guarantee that we would have trouble in this life. And although He encouraged us by telling us that He had overcome the world, we have not!! We still live in a broken world. Did I really want God to listen to my dictates in the elimination of suffering? Where would this end? If God relieves my mother-in-law what about the young child with cancer and what about the next and the next and the next? If this was how God operated, eventually, it would mean that I would lose free will. Is that what I want?
Hard questions...thought provoking...soul searching questions.
She continued to direct me to remember that we will all walk through death's valley and within that, we will each have our own particular journey. For some, the path has intense suffering and for others it's a different path. But we will each have our own steps to walk. "This is your mother-in-law's path; Alzheimer's. It's wrong for people to suffer and die but it is our reality. He grieves and enters into the suffering. God has an eternal perspective."
Gratefully Mum has adjusted to LTC in some delightful and comforting ways for us as family. The staff share with us of her participation in activities (even exercise classes and Halloween parties!!) and of her cheerful, teasing way about her. At this point, they are the ones privy to most of the enjoyment she experiences. They love the fun-loving "Mrs. O." which we remember from years ago. However, it's a different picture for us. We believe that our presence transports her mind back to "how it used to be" and she then struggles because she has some level of awareness of how much she has lost. We are a reminder of her "old life" and her new home is her "new life". Our times with her are often about trying to distract her from the very real pain of a lost memory and a new life which seems so confusing to her when we are present. We hope that eventually her mind will be able to bridge the gap between the two but there are no guarantees.
Dad is having his own life altering adjustment after experiencing a decline in his physical and emotional health. Although undiagnosed, I am convinced that Dad's hospitalization for physical pain was a result of emotional and physical exhaustion. He was burnt out. And though he is convinced Mum is in the best place for her AND for him, it's not easy after 63 years of marriage to now be living apart and adjusting to this next season of life.
It's been hard to watch the path Dad has been walking also. He suffered with intense pain in his first couple of weeks in hospital and lost a lot of weight. He quickly moved from a very independent man with a measure of quiet stubbornness :) to one who is now asking for help and relying heavily on others in varying ways. His life is vastly different today than 8 weeks ago. Dad has always been more private about his emotions and it has been surprising and welcoming to hear him express some of the turmoil and pain of these past weeks. We are then able to support and encourage him in all that he is experiencing. But where Dad hasn't changed is in his unwavering trust in God. Despite all that he and Mum have been through He has been swift to give thanks and praise to God for His provision and many blessings. Dad's legacy of faith has remained strong and sure.
Dan Allender, in his book, "The Healing Path" speaks some powerful and challenging words to me--
"Suffering can move us toward God,
or it can move us away from him
and consequently away from being human and alive.
If we are closed to sorrow,
we will also be closed to true joy.
If we see death...a physical illness
as nothing more than an event
to be resolved as quickly and painlessly as possible,
then we will miss the potential to grasp the true meaning of the event...
if we are to experience the good that God intends through our suffering,
at some point it is crucial to ask:
'What happens to me,
deep down,
at the core of my heart,
when I face loss,
suffering,
and harm?'
...Suffering changes the human heart--
sometimes for good and often for ill.
We are faced with the challenge of learning how to wrestle with sorrow
so it can bring about the greatest good.
If we want to become more like God wants us to be,
we must consider what it means to live well in a fallen world
rather than scramble to escape the veil of sorrow."
It has been pure honor to walk with Mum and Dad on their particular paths of suffering. Painful and overwhelming but yet a great privilege To be invited in to journey with my in-laws in such intimate ways has and continues to be a gift. As I spend time with my God and Mum and Dad I am being ushered into more of "what it means to live well in a fallen world." An unlikely but beautiful path of healing in the midst of suffering.